spoonie support system

Having a chronic illness can be lonely. People don't wanna hear about your health and don't try to understand. The few that do are few and far between. One of the best things I have found is a group of supportive spoonie sisters. They understand when you feel low or when you get excited over little successes. They are there for you and understand in a way that only another chronically ill person can. They understand that every day is a struggle. That the littlest thing can feel huge to you. Feeling that someone can understand what you are going through can mean the world. Some family and friends try but it's hard to understand what you have not felt or experienced. Finding anyone who can be there for you is so important.  So you know you aren't alone. Being ill can feel like you are so alone and miss understood. The feeling of being lost I found lifted by finding a group so spoonie women who are going through similar things to what I have been through and am going through.