Saturday 9 May 2015

A-Z spoonie tag

A - appreciation
Dealing with being sick makes you appreciate what you do have and the good days you have.
B - blood tests
Lots of blood work to check for all sorts of different things. Including yearly testing
C - celiac
Inability to digest the gluten protein. Lots of other health issues as a result are caused by having this condition specially if untreated.
D - doctors
Constantly having Dr appointments to check in on meds or just how you are doing.
E - energy
You learn to manage your energy wisely and not over exert your self.
F - fatigue
Otherwise the fatigue is uncontrollable.
G - grieving
Over missing out on thing put with your friends and often the simple things in life.
H- health
You look at health differently. And don't take it for granted
I - insomnia
Always having a hard time sleeping either cause of pain or just because.
J - jokes
Keeping up your sense of humour is important. Try and keep things light at time so you don't get down on your self.
K - kindness
You become kinder to others cause you know no all pain is visible. And you appreciate when people are kind to you.
L -  loss
The loss of your youth or old life can be hard to deal with. Which is also where grieving comes in.
M - memory
Fibro makes it hard to concentrate and focus. often it's hard to remember things. Which is horrible cause I generally have great memory
N - negativity
It's hard not to get down on your self and think negatively about everything
O - over active imagination
Often kept awake from thinking what will happen or what could often to little things that don't even matter.
P - positivity
Staying positive is key. It's hard but it is a must. Think of something good about your self or the day. It can be enough to keep you going.
Q - questions
So many questions about what will happen and what is going on with your health. Waiting for the questions to be answered can seem near impossible
R - relax
Staying relaxed is important. Stress makes many health conditions worse. So staying relaxed can help you reduce or avoid a flair sometimes
S - strain
Both on your body and on relationships. You will find out who is a real friend. And you will definitely find out what your body can do and what is so much of a strain on your body.
T - talk
Talking about health issues and raising awareness is so important. Educating people so they know how to treat people and what someone with your illness is going through.
U - ups and downs
You are gonna have ups and downs. You need to learn how to work with them. And how to deal with having them and not letting them stop your every day life.
V - vision
My vision and hearing have gotten really sensitive.
W - weight
Weight gain from meds and from not being as mobile. It's hard not to beat your self up over it but it's part of chronic illness.
X - x-rays
Part of being a spoonie is always going for tests.
Y - youth
Felling like you lost or missed out on your youth and suddenly are way older is definitely part of being a spoonie.
Z - zzzz The struggle is real! Always feeling tired but never being able to get a good sleep

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